Well, my old friend, the mystery illness paid me a visit again this week. I am not totally sure if it is the quick onset of summer heat right on the heels of winter cold, the thunderstorms, or something else that caused this. I know I have been pushing hard, with the Steampunk Symposium a few weeks back, the missionary prep work we have been up to, and the continued work Clockwork Cross Outreach. This is the first time in a very, very, long time that I have had any type of flare up of my chronic pain connected with my unknown, mystery immune dysregulation.
Headaches, sometimes migraine leavel, wrist pain, joint pain in general, being able to feel every past injury hurting all at once, lack of energy, pain insomnia, heat rashes, and some others that come and go, those are what I face in a flare up. Heat rashes and low grade pain are normal, but the rest and extreme pain are not. After nearly 19 years living with this, more than half my life, one would think I would be use to this. But I am not. I hate the not knowing this mystery illness creates. It makes hunting for anything other than temp work very hard.
At least the Victorian era had a culture that allowed for illnesses, true they had a bunch of quack treatments, but we still do today, just not as many total quacks slip through. When dealing with a mystery illness, that it took doctors 6 years to even give the "lupus like" immune dysregulation title, and more medicine that never helped, I have learned to take doctors with a grain of salt, and seek help where I can get it... from naproxen sodium, to green and herbal teas, and arnica.
If your like me, suffering chronic pain or mystery illnesses, hang in there. I am praying for all of us.
If your not suffering, pray for us and be here for us, thanks!
~ Michelle
Headaches, sometimes migraine leavel, wrist pain, joint pain in general, being able to feel every past injury hurting all at once, lack of energy, pain insomnia, heat rashes, and some others that come and go, those are what I face in a flare up. Heat rashes and low grade pain are normal, but the rest and extreme pain are not. After nearly 19 years living with this, more than half my life, one would think I would be use to this. But I am not. I hate the not knowing this mystery illness creates. It makes hunting for anything other than temp work very hard.
At least the Victorian era had a culture that allowed for illnesses, true they had a bunch of quack treatments, but we still do today, just not as many total quacks slip through. When dealing with a mystery illness, that it took doctors 6 years to even give the "lupus like" immune dysregulation title, and more medicine that never helped, I have learned to take doctors with a grain of salt, and seek help where I can get it... from naproxen sodium, to green and herbal teas, and arnica.
If your like me, suffering chronic pain or mystery illnesses, hang in there. I am praying for all of us.
If your not suffering, pray for us and be here for us, thanks!
~ Michelle



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